Van Ausdal, Morgan and Benporat, Ariella and Hernandez, Megan and Thomas, Gabrielle (2021) Parent satisfaction of CHOC’s palliative care services in the NICU. Masters thesis, Stanbridge University.
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Abstract
Within the past 5 years the topic of NICU care and palliation has become prominent in the pediatric occupational therapy profession. However, there is a lack of research specifically related to the improvement in the quality of palliative care for premature and medically fragile infants and their parents who are trying to cope with stressful and unpredictable situations. The presence of various environmental barriers such as infants being in isolettes, healthcare staff, and numerous lifesaving lines hinder a caregiver’s participation in parental roles. Therefore, the promotion of parent-infant bonding is of high importance in the NICU. The dynamic between these environmental barriers and caregivers fulfilling meaningful roles in the NICU setting is vital. Due to these interruptions and barriers in bonding, it is essential for developmental therapists, specifically occupational therapists, to encourage and guide parents to engage in various activities and occupations with their infants that they find meaningful. This thesis delved into why and how occupational therapists play a vital role in promoting and establishing meaningful parental occupations and parent-infant bonding within the NICU setting through numerous therapeutic interventions. The commonality found in the research and upon interviewing seven parents through a phone conducted survey is that the parents value the opportunities the developmental specialist team provides for caregivers to fulfill parental roles, the education they receive from the care team, and being encouraged to bond with their infants. These findings support the need for occupational therapy in the palliative care NICU setting.
| Item Type: | Thesis (Masters) |
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| Subjects: | R Medicine > RC Internal medicine |
| Depositing User: | Institutional Administrator |
| Date Deposited: | 25 Jan 2022 22:09 |
| Last Modified: | 25 Jan 2022 22:09 |
| URI: | http://repository.stanbridge.edu/id/eprint/97 |
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